[thumb:471:l]Trenton is sleeping right now, so I wanted to get a quick update in before he wakes up. I know it has been a few days – and we have been watching him very closely. His symptoms have started to get worse…so we decided to start him on the Decadron today…hopefully this will ease his symptoms and allow him to have a better time during our Make a Wish Trip (1/23/06 to 1/28/06). Tomorrow we will see Dr. Rubin again and get another blood work up to see if his platelet count has come up – and to discuss his current symptoms: balance problems (he says he is dizzy sometimes), walking unsteadily (he says his legs are tired), slurry and slow speech, headaches (some small-others require Tylenol), left side of his mouth started to turn downward, not using his left hand (grasp is not strong), sometimes he drools and has problems swallowing his pills…
Yesterday, I took the kids to Meijer to get them a toy and pick up some food…it was the first time I actually had to carry him. I have to tell you that the last week has been so hard to handle emotionally – trying not to break down in front of the kids. Everything has happened so fast – even after all of the reading and research that I have done about this tumor and its affects…I knew what to expect…but I still am not ready emotionally for this. I can say that going through this will be the hardest thing I will ever do in my lifetime…I always thought of myself as a strong person…but watching Trenton losing his abilities like this has changed something inside of me…..
No, I am not “losing it”…I want to use this site to keep everyone updated on Trenton and our family. I also want to explain the way we are feeling. I know you hear from me alot….and I am going to ask Clint to write some updates too…he is working to keep are bills at bay, so I usually keep everyone updated on Trenton’s progress. Clint has been very strong and positive this week – I can tell by the look on his face that he is hurting inside – keeping it all inside…
Although Trenton is experiencing these problems, he is still happy. I ask him if he notices that his talking has changed, and he says no. He tries to walk and still gallops sometimes to get where he wants to go…he is not in any pain (besides the headaches) and he acts as if everything is funny. He amazes me….
Ariana is aware of what is going on – and what may happen. I am going to ask Mary Nonas (my therapist and also a Crown Point school counselor) to talk with her this week.
Trenton just woke up…Clint or I will let everyone know what happened tomorrow….
Donna[newline]
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