Update

[thumb:493:l]Alot of decisions were made yesterday…but more will come after Trenton’s Make-A-Wish Trip next week. Although there is a chance his symptoms could be caused by radiation necrosis…it is more likely he is experiencing tumor growth…in either case, the decadron will help keep the swelling down and ease his symptoms. We decided that we will wait until February 2nd to have an MRI. At this point, an MRI would not really show us anything but swelling – and may not even be able to tell us whether it is growth or necrosis. Trenton’s platlets went up to 190 (GREAT!!) – but we decided to wait on giving him the 6th round of Temodar until after the MRI (if the tumor is growing-the Temodar is not working anymore). We want him feeling good and having alot of energy for next week. We will be taking lots of naps this week – so please limit any phone calls…

Trenton will be getting his wheelchair today….and we have a handicap placard for our vehicles. We are thinking in the short-term right now…wanting him to have the best possible time next week. When we return, and after the MRI, we will be making more decisions about what route to take. We are NOT giving up…we will FIGHT this tumor til the end!!!

Trenton is still making plenty of jokes….always making us laugh…he seems not to notice he has changed. I look into his eyes and I see my Trenton there. You may wonder how do I handle this – let me tell you it is so hard, there are not even words to explain the pain. But I try to make myself numb so that I can enjoy this time, enjoy Trenton’s laugh and listen to his words. We live in such a busy world…I enjoy the minutes – just sitting and looking at him – at Ariana – at our family as we eat dinner, etc. I would suggest to all of you to do the same with your famiily today and continue to do so…listen to your children talk…pay attention to what they are telling you…do not be frustrated by the little things they ask of you…hold them close…tell them you love them…

We give Thanks to all of you who have helped us in so many ways: Amy – your spaghetti is FANTASTIC!!, for your phone calls of hope and inspiration; Mom & Denise – for being there to talk too and cry with, for taping the kids voices, so many other things…; Theresa & Family – for your calls of encouragment and love; Suncrest Church – for making our Christmas so special (Joey, Melanie, Holly, Erica, Sarah and so many others); Sand Ridge Bank – for your rootbeer popsicles (Trenton always gets at least 3)….Clint and I have so much to be thankful for….we are humbled by your donations – May God Bless all of you who have been following Trenton’s Trek.

Donna[newline]